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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: Nov 5 4:01pm | Replies (1097)

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@jcarndt

I completely understand your frustration, mostly because we are in the same boat with the redundant colon. I also have a side order of Crohn's disease, which makes things interesting. I too have had experience with certain "expert" doctors who don't seem to have a clue, sometimes the one we've waited the longest to see. It's especially infuriating when they treat you like you don't know what your own body is telling you, isn't it ? Many of us have had that same experience, and It's easy to feel like we've somehow slipped through the cracks of the medical system. There are many days that I feel like I am treating myself with the help of Dr. Google and an occasional tele-med visit with my GI doctor, who is in another city. He's pretty good, but he doesn't have all the answers either. I wish I had some words of wisdom for you other than "hang in there" or "thoughts and prayers" and that kind of stuff. I will say that I have learned a lot from forums such as this one. Some of it worked for me and some of it didn't. But it's hard to separate the good from the not so good. So I keep plugging away. My current strategy is a combination of things I've learned from other people, along with an Rx from my GI doc. Mostly it works, but it seems like I'm always tweaking it. Don't give up. And don't give up on finding the right doctor for you. There are some out there.......

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Replies to "I completely understand your frustration, mostly because we are in the same boat with the redundant..."

Thank you for your kind words. Was very despondent last night. Feeling a little better about everything today. Realized after talking with my husband that I basically have been managing this on my own anyway, so nothing really is any different. I guess I was just hoping this dr was going to be the one that would be more “hands on” with helping with that. I’m going to take some ideas I’ve gotten from this site and try adding them in a little at a time. I did find a new dr I’m going to call in am. Thanks again for your supportive words words. Means so much coming from those who truly get it!