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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: Nov 5 4:01pm | Replies (1097)

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@anne4u

I certainly understand why you’re ready for answers and help! I’m going through something similar right now with my health. It can be frustrating to be patient dealing with our medical system. So much has changed since Covid. And I’ve had to wait months to get an appointment with a specialist. In February I found myself at the emergency dept one night after 11 days without a BM. It took 9 weeks to get into see my gastroenterologist then a week for the colonoscopy. I was diagnosed with Tortuous colon in May. I’ve had IBS for years also.

What is happening with your colonoscopy prep that you’re not clear for your colonoscopy? I know that’s really necessary for a look at your colon. Does your Dr have any idea why your bleeding? Are you waiting to get those questions answered?

I’m just now figuring out what to do for Tortuous colon. I’ve been reading about it online. This is a great place for information and support. I’ve been reading about food and natural ways to keep things moving! I’ve increased my water intake. I’m taking softeners every evening right now. My stomach is pretty bloated and some days I’m not as comfortable as others, that’s for sure!

Personally, I would call my drs office if I’ve waited several days for them to call me. If you need an appointment, kindly remind them you’d like to schedule it. I consider it advocating for myself! Unless there is a reason for the wait?

I’m glad you reached out! It really helped me to share my concerns about this diagnosis!

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Replies to "I certainly understand why you’re ready for answers and help! I’m going through something similar right..."

They did get me cleared out enough for the 2nd attempt at a colonoscopy, they just can't see the whole thing because of all of the loops.
During the barium enema, the Dr. still couldn't see that much of it and I literally heard him say "I don't what to do."
There has been a lot of time between these appointments. Nobody knows yet exactly why there's still blood in my stool.
It's almost like the whole tortuous colon is a rather unusual issue and nobody really knows exactly what to do with us, ya know?
May I ask what kind of softeners you use?
Thank you so much for your input!
-Kathy