← Return to Neuropathy post-Covid infection: Is there treatment that helps?

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@nelsone

It almost sounds like you had Fibromyalgia more than Neuropathy.

I've been dealing with this probably 10 years now. 1800mg of Gabapentin is considered the minimum therapeutic dose. 3600 is the max but then you get the side effects which for me is serious tiredness. The Gaba helps a little but is no magic pill. I discussed Lyrica with my MD but he says there is no real benefit to that.

The only thing left are opiates. I reserve Tramadol for very bad nights. I have found a couple of heavy duty Tylenol sometimes has the effect of just taking the edge off but that's hit or miss.

The bad thing about this incident with the vaccine and increased Neuropathy has given me a window of what the future holds and it's not good. For now I'm back to normal.

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Replies to "It almost sounds like you had Fibromyalgia more than Neuropathy. I've been dealing with this probably..."

Glad you’re at least a bit better for now, even though it’s temporary. I’ve learned to be thankful for the good days as I’ve been sick for over 2 years. Covid left me with a very serious lung condition that’s permanent and will affect me for the rest of my life. None of this is any fun, I hear ya.
Did covid exacerbate your neuropathy since it was already something you had? I’m surprised opiates and over the counter meds help your nerve pain but the proof is in the pudding. I do have a medical background and know that neuropathy is tough to treat. I don’t have fibromyalgia but I had excruciating burning pins and needles like I was on fire, then intense muscle pain where the pins and needle pain was and then extreme muscle weakness in the same places to the point of literally not being able to walk. This was at its worst when I had covid but came back to some extent after the vaccines. Gabapentin is a difficult drug to take and it’s hard to get the right dose, especially if the pain level keeps changing. It’s also extremely hard to get off of. You have to titrate down for a long time and it can give you untoward psychological side effects so be careful if you change your meds. I thought I was going to lose it when I went off! I also decided to not get anymore boosters because of the side effects, especially since it seems that they really don’t know enough yet about the actual protection they give you and the virus mutates constantly. I hope you find some permanent relief from your pain, but more importantly, I hope it goes away!