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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: Nov 5 4:01pm | Replies (1097)

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@kalbin

I just found to have a very tortuous colon. After a failed colonoscopy and a failed barium enema after almost 3 bags of barium, no one has been able to see more than half of it. The only symptoms I've had are life long constipation, but more recently blood in the stool that's been getting better but going on for months. They are supposed to have me meet and talk with the Dr. but I haven't heard from them yet and they said that several days ago. I've been trying to get answers for this since January. I take miralax and magnesium chloride to help relieve the constipation.

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Replies to "I just found to have a very tortuous colon. After a failed colonoscopy and a failed..."

@kalbin, you are not alone. I moved your message to this existing discussion about tortuous colon. I did this so you can connect with others like @bgiddio @sickofbeinsick1 @dsheahan1951 @sallyw133 @kayla1988 @kayburnett @notmoff @anne4u and many others.

Kalbin, this is a new diagnosis for you and I'm sure you have many questions. Does the miralax and magnesium help with the constipation? Did the doctors have an explanation for the blood in your stool?

I certainly understand why you’re ready for answers and help! I’m going through something similar right now with my health. It can be frustrating to be patient dealing with our medical system. So much has changed since Covid. And I’ve had to wait months to get an appointment with a specialist. In February I found myself at the emergency dept one night after 11 days without a BM. It took 9 weeks to get into see my gastroenterologist then a week for the colonoscopy. I was diagnosed with Tortuous colon in May. I’ve had IBS for years also.

What is happening with your colonoscopy prep that you’re not clear for your colonoscopy? I know that’s really necessary for a look at your colon. Does your Dr have any idea why your bleeding? Are you waiting to get those questions answered?

I’m just now figuring out what to do for Tortuous colon. I’ve been reading about it online. This is a great place for information and support. I’ve been reading about food and natural ways to keep things moving! I’ve increased my water intake. I’m taking softeners every evening right now. My stomach is pretty bloated and some days I’m not as comfortable as others, that’s for sure!

Personally, I would call my drs office if I’ve waited several days for them to call me. If you need an appointment, kindly remind them you’d like to schedule it. I consider it advocating for myself! Unless there is a reason for the wait?

I’m glad you reached out! It really helped me to share my concerns about this diagnosis!