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Raynaud's Syndrome: Anyone want to talk about Raynaud’s?
Autoimmune Diseases | Last Active: Dec 25, 2023 | Replies (225)Comment receiving replies
I also have Raynauds but not as severe as you. During the day my toes are blue and purple. My hands are not to bad. I also have the opposite, which is called
Erythromelalgia which makes my feet and lower legs intolerant to warmth and heat. Especially at night. I go to bed with ice old blue feet and wake up about 2 hrs later with my feet extremely hot/burning red and swollen. The only thing that gives me some relieve is Aspercream with Lidocaine since meds for one would aggravate the other. This has been going on for 16 years when I was first diagnosed by Mayo's. In the last 3 years I added neuropathy to these conditions and I was told that this happens quite frequently. Still looking for answers, so don't give up.
Replies to "I also have Raynauds but not as severe as you. During the day my toes are..."
Yes I have had the swelling as well. I stopped wearing rings more than a decade ago because it would come out of nowhere and my hands and fingers would just swell up. It was too painful to wear rings, even those little rubber ones. My husband was upset at first when I would not wear the wedding band but now he understands. For the longest time I just thought it was arthritis. If it wasn't the swelling, then the metal ring was making my hand freeze. So I wear a lot of earrings cause that's the only jewelry I can wear that doesn't hurt me! 😉
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I am same....almost exactly. Reyanauds and Erythromelalgia.
I have had the chilblains as well. I exacerbated the issue by trying to warm myself in a hot tub, immersing my feet as well. That is a bad idea. The blood will pump into the digits, then cannot return. The only thing that’s had helped me though it was to protect the ends of the toes with silicone toe caps.....and do not immerse feet in hot water. Baby bottle warm at the most.
This post won’t let me link to a website, but just do a web search for “silicone toe protectors” .
Good luck.
PS...I’ve also used them at night with a little healing cream on the ends of the toes (polysporin...if you know what that is).