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@papas

I was diagnosed 9/24/21 by my PCP, blood work did not show elevated levels but every joint felt like it was under attack, sleep was impossible and I was put on 40 MG Prednisone which brought relief within hours. Then referred to Rheumatologist who I finally met with 2/28/22 and have not seen since. He and I communicate via “Patient Gateway” MGH’s communication system. Since my initial diagnoses I have been slowly reducing Prednisone and currently on 4.5MG (2.5MG AM and 2MG PM) Visits and testing have not been discussed both the Rheumatologist PCP and me are happy with my progress. I do experience mild neck soreness in the AM that reduces with activity but this has remained the same with each step in the reduction. I am so thankful for this site which showed me that this is a journey and I need to listen to my body carefully.

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Note I used to split my dose of prednisone, but one rheumatologist told me that was not wise because your adrenal glands need to rest (I think that's what she said). Anyway, I now just take it late morning so it doesn't affect my sleep as much.