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DiscussionRaynaud's Syndrome: Anyone want to talk about Raynaud’s?
Autoimmune Diseases | Last Active: 2 days ago | Replies (271)Comment receiving replies
Replies to "I am thrilled to have just found this group. I was diagnosed with Raynauds two years..."
I also have Raynauds but not as severe as you. During the day my toes are blue and purple. My hands are not to bad. I also have the opposite, which is called
Erythromelalgia which makes my feet and lower legs intolerant to warmth and heat. Especially at night. I go to bed with ice old blue feet and wake up about 2 hrs later with my feet extremely hot/burning red and swollen. The only thing that gives me some relieve is Aspercream with Lidocaine since meds for one would aggravate the other. This has been going on for 16 years when I was first diagnosed by Mayo's. In the last 3 years I added neuropathy to these conditions and I was told that this happens quite frequently. Still looking for answers, so don't give up.
@stitch25 it certainly sounds like you have things under control. I agree with shopping in the refrigerated section! I usually have to wear a coat and mittens! oh @stitch25, i forgot to welcome you to Mayo Clinic Connect! We’re a community of people who share their experiences and help each other. I’m so glad you found us!
Do you have any other autoimmune diseases? I hope not! Take a look at all the groups and discussions. Hope you can stay with us