← Return to Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

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@stitch25

I am thrilled to have just found this group. I was diagnosed with Raynauds two years ago by my podiatrist. After reading up on it, I believe I have been living with it for decades and never knew it was an autoimmune disease. The freezing pain in my toes and fingers is the worst, it will sometimes radiate up my legs and arms if I cannot source warmth to stop it. the discoloration has been especially bad in my toes. I wear wool socks 365 days a year, and I always have a hoodie and gloves in my car or at work no matter what season it is. I get especially cold when I lay down to sleep at night and sometimes I even sleep with my gloves on. One thing that has helped slow down the symptoms for me is to completely change my diet to avoid all inflammatory foods, especially anything with sugar or grain of any kind in it. The Raynauds is still with me, but symptoms became far more manageable when I made those changes. I HATE shopping in the refridgerated section for anything at the grocery store! that is a painful experience. For pain management, I use topical treatments: solanpas patches cut in small strips to wrap my toes, or voltaren ointment, as I will not take drugs.

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Replies to "I am thrilled to have just found this group. I was diagnosed with Raynauds two years..."

@stitch25 it certainly sounds like you have things under control. I agree with shopping in the refrigerated section! I usually have to wear a coat and mittens! oh @stitch25, i forgot to welcome you to Mayo Clinic Connect! We’re a community of people who share their experiences and help each other. I’m so glad you found us!
Do you have any other autoimmune diseases? I hope not! Take a look at all the groups and discussions. Hope you can stay with us

I also have Raynauds but not as severe as you. During the day my toes are blue and purple. My hands are not to bad. I also have the opposite, which is called
Erythromelalgia which makes my feet and lower legs intolerant to warmth and heat. Especially at night. I go to bed with ice old blue feet and wake up about 2 hrs later with my feet extremely hot/burning red and swollen. The only thing that gives me some relieve is Aspercream with Lidocaine since meds for one would aggravate the other. This has been going on for 16 years when I was first diagnosed by Mayo's. In the last 3 years I added neuropathy to these conditions and I was told that this happens quite frequently. Still looking for answers, so don't give up.