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Welcome to the NETs Group! Come say hi.
Neuroendocrine Tumors (NETs) | Last Active: Apr 17 5:51pm | Replies (384)Comment receiving replies
Just checking in and saying hello before the support group meeting tomorrow. I am new to the group and have been learning my way around Connect. I was diagnosed with NETs to the liver without discovery of the primary tumor in February 2021. I have been receiving lanreotide injections since then and also completed 4 PRRT infusions beginning in July 2021 and ending in January 2022. My first follow-up scans in April showed significant decrease to lesions in the liver and I'm feeling well. I do have some side effects from both treatments, but nothing that is not manageable. I receive treatment at Mayo Arizona and also in my hometown of El Paso Texas. I'm looking forward to learning more about NETs and management strategies and treatments from other members of the group. Thanks for providing this option.
Karen
Replies to "Just checking in and saying hello before the support group meeting tomorrow. I am new to..."
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Hello Karen (@kjstein)
Welcome to Mayo Clinic Connect! I am glad to hear that you have been finding your way on Connect.
It will be nice to meet you (virtually) tonight at the support group meeting (it is necessary to register in advance for the meeting in order to get the Zoom link).
You must be very pleased with the results of your NET treatments. It sounds good that the lesions in the liver have decreased. Were you able to tolerate the PRRT, well? If you don't mind sharing more, what side effects, if any, did you experience?