← Return to PMR - Decreased prednisone and pain returned

Discussion
Comment receiving replies
@annettetompkins

So sorry that on top of everything else, you had a bad experience with your rheumatologist. Mine is so young, I refer to him as Doogie Howser, MD! I initially told him that I had learned so much from this forum, and I think he appreciates that I don't waste his time asking the obvious. At my first appointment with him in February of this year I had tapered down to 9mg of prednisone and am now sitting at 5mg for the next two months. I have all the usual stiffness in my arms, hands and pelvic girdle first thing in the morning, but no pain. Sometimes the need to take naps is a nuisance, but I have learned to embrace it and also to pace myself during the day. After a lifetime (I'm 75) of being a high energy person and not retiring from a very active career until I was 70, I was frustrated at first, but now I count my blessings that PMR is not life threatening, and I will get through this. Good luck with finding a "rheumie" who is more empathetic and will listen to you. In my family we always say that your present doctor is the way she is because she doesn't get enough love!

Jump to this post


Replies to "So sorry that on top of everything else, you had a bad experience with your rheumatologist...."

I agree. 72 and still working part-time. Was full time until the PMR kicked in full blast last October. Fortunately, I don't work in the afternoons, so power nap fits in well. I dropped down to 12.5mg yesterday and feeling the impact of it today (my day off). Fell to sleep at 10:30 this morning and woke up after 12:30. The get up and go got up and went. I did manage to get my laundry out on the line prior to the "nap". I could have another nap now and it's 3:15. I'm not looking for empathy in a Rheumatologist really, although I think it should be within her scope to exercise a little. My problem was that everytime I tried to talk, she talked over me with an already-formulated answer to a question I was not asking. Maybe I should have a cup of coffee for an energy boost, which is what she suggested and I don't think it was tongue-in-cheek. Maybe her ''sense of humour" escapes me. 😉 Just seeing how this tapering goes, one day at a time. Ditto on the truly grateful PMR is not life threatening and that at 72 I'm still able to work and keep up with the young'uns. Cheers!