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@jzarzeck

Thanks for the feedback! I originally thought it was long covid. I live near St. Louis and Washington University has a very good hospital. They have a long Covid research center there. I called to make an appointment in April before I got the echocardiogram and the first available appointment wasn't until Feb of 2023. I went ahead and took it and either hope to move up due to others cancelling because they no longer have symptoms or me cancelling for the same reason. My doc and I have talked about long covid a bit. Seems he wants to keep running tests for now before diagnosing me with it. He told me that if the echo came back without any concerns then we thought a sleep study would be the next step. He asked if I snored which I don't. He asked if my wife ever noticed that I stopped breathing while sleeping for a few seconds and she hasn't. I am ready to find out what is going on and I guess he wants to run tests ruling out the possibility for everything else. I don't know how sleep apnea effects the body but when I have the days where I feel fatigued it isn't like a normal tired. It's like I am shut down for the day and the next few as well. If I drank 5 pots of coffee it wouldn't make my symptoms go away. If I try to do anything physical at all it makes my symptoms even worse. I just don't know if sleep apnea effects the body that way or lowers the blood pressure on days where I am feeling the effects like I have noticed. I guess I will see what he says on Friday and go from there but at some point we are going to run out of tests to run and I guess at that point he will agree it's long covid?

Thanks for the feedback Teri and Sue!

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Replies to "Thanks for the feedback! I originally thought it was long covid. I live near St. Louis..."

My daughter could have written "... but when I have the days where I feel fatigued it isn't like a normal tired. It's like I am shut down for the day and the next few as well. If I drank 5 pots of coffee it wouldn't make my symptoms go away. If I try to do anything physical at all it makes my symptoms even worse."
She suffers from long Covid, and it has taken her 2 years to learn to cope and manage her energy levels. She has been in a long Covid program for over half that time, and is getting better at knowing what she can do.
Have you seen the many helpful videos about post-Covid recovery on Mayo's blog?https://connect.mayoclinic.org/blog/post-covid-recovery/
It might help you to decide how far to go with other testing, and strategies you can try before you get in to see the long Covid clinic.
Sue