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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)

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@joypalmer1

I have recently been diagnosed with small fiber neuropathy. It started with tingling in both my hands at feet at the same time. This has continued for 10 months. My symptoms didn’t start until 6 months after I had my second vaccine. I was wondering if anyone started to get symptoms months after the vaccine or did it start right away? I just don’t know if the vaccine could have caused this so many months later.

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Replies to "I have recently been diagnosed with small fiber neuropathy. It started with tingling in both my..."

@joypalmer1 I have been diagnosed with small fiber neuropathy (idiopathic). I retired from work in March of last year and woke up two days later with full onset pinpricks all over including my eyes. Mine is non-length dependent because it started all over my body. I had no idea till I saw a neurologist. I had the two vaccines in January with the last one on Jan. 29th. It was the around March 10th that they pinpricks started. I had a lot of testing done and the only thing that was positive was the skin biopsy for SNF. I did not consider the shots at all till recently. I asked the question of many people when after the shots did you experience issues. Some right after the shot and some not till weeks later. I wonder the same thing about the shots but I went in to see the ARNP for gastroenterology and she told me that since Covid started that a lot of people have ended up with gastro problems she thinks are related to the shots. I asked the neurologist on my first visit how many patients that he had woke up with full onset like I had. He said NONE. It is rare. I have since had the boosters and will continue to take them if they are offered. I believe in taking the shots. You can google things regarding the covid shots and symptoms. There is a group on Facebook that talks about it. I have done a lot of reading about it. I am a retired nurse and I have a firm belief that knowledge is good if you have something. I have a friend that said they take a certain medicine but don't know what it is for. I have another one that doesn't want to know certain things from her Doctor. I have seen that a lot over the years in patients. I want to know everything I can about this issue that I can find out. The neurologist checked me for a lot of the usual autoimmune diseases, genetic testing, heavy metals, vitamin B level. I had a brain scan. I have had other tests too. When they tell you it is idiopathic meaning no known cause that is difficult. People want to know. I write down questions that pop in my head and also after reading things about SNF. Good luck to you in your quest to find out information.