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DiscussionPMR - Decreased prednisone and pain returned
Polymyalgia Rheumatica (PMR) | Last Active: May 28 1:36pm | Replies (157)Comment receiving replies
Replies to "The Rheumatologist was as her reviews depicted her. My approach was to go in with an..."
So sorry that on top of everything else, you had a bad experience with your rheumatologist. Mine is so young, I refer to him as Doogie Howser, MD! I initially told him that I had learned so much from this forum, and I think he appreciates that I don't waste his time asking the obvious. At my first appointment with him in February of this year I had tapered down to 9mg of prednisone and am now sitting at 5mg for the next two months. I have all the usual stiffness in my arms, hands and pelvic girdle first thing in the morning, but no pain. Sometimes the need to take naps is a nuisance, but I have learned to embrace it and also to pace myself during the day. After a lifetime (I'm 75) of being a high energy person and not retiring from a very active career until I was 70, I was frustrated at first, but now I count my blessings that PMR is not life threatening, and I will get through this. Good luck with finding a "rheumie" who is more empathetic and will listen to you. In my family we always say that your present doctor is the way she is because she doesn't get enough love!
Hi, milld835,
I can't imagine your disappointment. To wait so long to get in there and then to be treated like that. I agree - you need to shop for a new rheumy again. I did too, and I'm really glad I did. Good luck!