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← Return to PMR - Decreased prednisone and pain returned
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PMR - Decreased prednisone and pain returned
Polymyalgia Rheumatica (PMR) | Last Active: Mar 30 7:58pm | Replies (101)Comment receiving replies
Omg I just reread my post! I thought I sounded very flippant and somewhat arrogant with my last comment about staying on prednisone indefinitely. Yes, ultimately my reason for living at this point in my life (78) is to live within the opportunities and “limitations” of my physical body. My response to that is the one thing I have a choice on - hence seeking Joy 🤩. This 3rd time with PMR has been a tough pill to swallow, and I am determined not to have this closing chapter filled with bitterness and fear. Some days are super, others not so much….but this group gives me courage knowing that there is no judgement just support and encouragement. Thank you guys for being there 💞🇨🇦💞
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I was a very active 73 yr young I have had pmr now for a year and had a flare up in December and it has taken me 6 months to get back to 8 mgs. I golf and ski and have no plans to give this up. I know the goal is to get off prednisone but quality of life is more important to me. You need to take enough prednisone to keep the inflammation at bay if not it builds up then flares I am now reducing .5 mg every 4 weeks and soon will go to dead slow nearly stop taper. When I am depressed I remember that I didn’t have a bad stroke, heart attack or cancer and that this disease is treatable and the drug is cheap. I lost my wife suddenly 11 years ago. I just want to enjoy my time left. All the best and hang in there,