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Superficial Siderosis

Brain & Nervous System | Last Active: Nov 27, 2021 | Replies (47)
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@kygirl58

Does anyone else here have superficial Siderosis?

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Replies to "Does anyone else here have superficial Siderosis?"
lrg | @lrg | Jun 1, 2022

what is that exactly?

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stevegrinstead | @stevegrinstead | Jun 1, 2022

Yes. I do. Mayo Clinic/Steve GRINSTEAD. Also Brain and Life/Steve GRINSTEAD. Please also go to Living with Superficial siderosis website. You can contact me.

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kygirl58 | @kygirl58 | Jun 1, 2022

Steve, I am on the SS Facebook pages and we have talked on there before. Thought I’d see if there was anyone following SS on here. The more we can identify, the more support we might get!
Bena DeHaven Travis

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Amanda Roe | @amandajro | Jun 4, 2022

Hello @kygirl58. I see @johnbishop has kindly welcomed you to Connect! I wanted to let you know that I found another discussion on superficial siderosis so have moved your post there to join members such as @herbertli who started the discussion as well as @stevegrinstead and @jposewitz who have both shared in the past.

Can you share a bit more about your experience with superficial siderosis and what questions you have or what support you may need?

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