← Return to PMR - Decreased prednisone and pain returned

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@sashakay

this is the protocol which has worked well for me. It does take a considerable amount of weaning time, and patience with yourself, but for me, so far so good. It has taken me quite a while to reduce from 7 mg - 7/6/ for 4 weeks 6/6 for 4 wks, 6/5 and so on. Now at 4 mg for another 2 weeks. This is my 3 rd round of PMR each one 11 years apart. But by far this is the most challenging one to wean down. At 4 mg I am experiencing mood shifts, de-personalization, crying jags and restlessness. No pain and amazingly low CRP number 2.7! My philosophy is that if I have to go back to 5mg and then have to stay on that indefinitely, that's what my individual body needs. the goal for me is to lead a full, and conscious lifestyle - Joy is my goal lol

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Replies to "this is the protocol which has worked well for me. It does take a considerable amount..."

Omg I just reread my post! I thought I sounded very flippant and somewhat arrogant with my last comment about staying on prednisone indefinitely. Yes, ultimately my reason for living at this point in my life (78) is to live within the opportunities and “limitations” of my physical body. My response to that is the one thing I have a choice on - hence seeking Joy 🤩. This 3rd time with PMR has been a tough pill to swallow, and I am determined not to have this closing chapter filled with bitterness and fear. Some days are super, others not so much….but this group gives me courage knowing that there is no judgement just support and encouragement. Thank you guys for being there 💞🇨🇦💞