Because of having a very rare blood disorder, I’ll be 1 out of 3.5 million people with it. That means there is only about 340 people in the United States that will have it, if they get tested for it. The official name is Waldenstrom Macroglobulemia, which is already a rare form of Non Hodgkin’s Lymphoma. So my 6 doctors believe my WM has set up a home in my brain causing a tumor. I have to get 2 CT scans on the 24th and 3 MRI’s June 22nd. If that isn’t bad enough, they believe the tumor is the same kind that killed my sister in 1989 at just 39yo. It was a rare tumor called Anaplastic Astrocytoma. My poor kidneys can’t keep up with all the bad guys setting up shop all throughout my body. My last blood check had a reading of 38 and was still tanking towards dialysis, so I’m literally falling apart but still fighting. My favorite quote “I cried because I had no shoes, till I met a man who had no feet.” Things can always be worse. I came into this world with a sickly body and I’m going to leave still in it.