Hi Amy-
So sorry to hear about your diagnosis, just know there is so much newer treatments today than just a few years ago. So stay positive and ask lots of questions.
Have your doctors done a lung needle biopsy of the tumor? If so, did they do a genomics or nuclear study of the biopsy to determine the type of mutation? In view of the timeline, I assume there has been no surgery on your lung.
My wife was diagnosed with two adenocarcinomas (1) 12 cm in right middle lobe and (1) 6 cm tumor in right lower lobe in May, 2015.
The Mayo thoracic surgeon removed both lobes in a VATS procedure after stage 3a diagnosis.
She had chemo as a just in case therapy…even though our surgeon was convinced that he had gotten it all!
She has been stage 4 since 2017 and is now on enhertu chemo.
The mistake made was not having a molecular study until 2016 when her cancer continued to grow after having had treatment with Opdivo therapy for the tumors which had reappeared and continued to spread... all the time thinking hers was the typical efgr mutation.
We found with the study of a needle biopsy that her mutation was a HER2 mutation and all along she had been treated for a typical EFGR mutation.
Bottom line….get a genomics study on the biopsy before the doctors give you any chemotherapy!
Keep your chin up. Stay strong. Lots of new science every day.
We find prayers help a lot!!!
Take care!