Dear @ripley, Wow, your situation is complicated! I will try to address the part of your question that addresses what kind of Dr you need. I wouldn't ignore the possibility of an alergist for the headaches. I was born with migraines and the doc that helped was an alergist. Also my first occurance with PMR was handled by my primary GP. (Although, he never gave me a diagnosis so when I lost access to him I really hadn't learned anything.) My first rheumy when it reoccured 30 years later didn't have a clue what was wrong with me and I spent way too much time with him before I found one who saw what was going on. So, give them chances but not too many before you move on. My pain is definently in my muscles and I think that is telling. Best of luck to you.