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Dermatomyositis

Autoimmune Diseases | Last Active: May 29, 2022 | Replies (23)

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@brfire63

My wife was just diagnosed with dermatomyositis, is this disease manageable with the proper medication

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Replies to "My wife was just diagnosed with dermatomyositis, is this disease manageable with the proper medication"


Good morning, @brfire63 I don’t have any experience with your wife’s condition but I have found the following information on our Mayo Clinic website.

“There's no cure for dermatomyositis, but periods of symptom improvement can occur. Treatment can help clear the skin rash and help you regain muscle strength and function.”
https://www.mayoclinic.org/diseases-conditions/dermatomyositis/symptoms-causes/syc-20353188
It looks like dermatomyositis is a fairly rare disease with only 1 in 100,000 people developing symptoms. From my research, it can be very serious but if caught in the early stages and with treatment, it can be fairly well managed.
Is your wife currently on medication? If you don’t mind my asking, what were her symptoms?

Hi @brfire63, I'd like to add my welcome. I moved your question to this existing discussion about dermatonyositis https://connect.mayoclinic.org/discussion/dermatomyositis-1/
I did this so you can connect with others living with the disease like @amberrose @kathrynmccune

I'm sure this is frightening for both you and your wife. Like, @loribmt, I look forward to learning more about you and your wife, how you are coping with the new diagnosis, and the questions you have.