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Starting MAC treatment with "big three" drugs: What to expect?

MAC & Bronchiectasis | Last Active: May 8 5:56pm | Replies (192)
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@sueinmn

Hello, this may be one of the most asked questions in the MAC discussion group. If you click the link below, you'll find a lot of helpful information.
https://connect.mayoclinic.org/discussion/starting-mac-drugs/
Do you mind telling us how your MAC was diagnosed, and how you found Mayo Connect?
Sue

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Replies to "Hello, this may be one of the most asked questions in the MAC discussion group. If..."
kmescherich | @kmescherich | May 27, 2022

Hi Sue,
Thank you for responding back to me.

I lost an unintentional 20 pounds and the MD was wondering why. MD ordered a CT scan and found several nodules in different parts of my lungs. At that point we began doing some testing. TB = negative, while MAC = positive test results.

I will begin drug therapy on Monday. Am very anxious about taking these toxic meds.

Do you or anyone else know how long it takes to get hit with side effects from taking these 3 different antibiotics?

In regards to the Mayo Clinic, it seems there is no other MAC forum out there. This is the only MAC forum I could find.

You have a good holiday weekend.
Thanks again for responding to my question.

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kmescherich | @kmescherich | May 27, 2022

Hi Sue,
For the time you have known about MAC lung disease and helped people and known about the side effects of the big 3 antibiotics, have you heard or known anyone who has been hit with blindness, color blindness, or loss of central vision, or other vision issues by taking Ethambutol?

Thanks again Sue.

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Colleen Young, Connect Director | @colleenyoung | May 28, 2022

@kmescherich, as Sue suggested, you'll find many helpful posts in this discussion:
- Starting MAC treatment with "big three" drugs: What to expect? https://connect.mayoclinic.org/discussion/starting-mac-drugs/

I moved your post to the existing discussion so you can connect with many.
As you prepare to start treatment, you may also find these related discussions useful:
- Just started big 3 for MAC: Questions about dosing and more https://connect.mayoclinic.org/discussion/just-started-the-big-3-for-my-mac/
- MAC Antibiotic Medication: What time schedule works best for you? https://connect.mayoclinic.org/discussion/medication/

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