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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)

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@catharbert

Thanks to everyone who responded to my post about starting IVIG for CIDP. Since I've only had 5 days of treatment and no obvious improvement yet, maybe even less strong than before, it has really helped me to hear your stories. I must be patient and stay the course in order to see any improvement. Now I am trying to decide whether or not to have a port put in my chest so that future treatments won't require having needles in my arms. I was told by people who have the ports that they make therapy much easier. I went online and read of the risks and problems and scared myself. Now I'm not sure if I want to go through with having one installed. Can anyone tell me of bad consequences or problems maintaining a port? I am concerned about infection. I already have to catheterize myself 4 x a day as I have damage to the nerves that control my bladder.

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Replies to "Thanks to everyone who responded to my post about starting IVIG for CIDP. Since I've only..."

Hi @catharbert
I have a port that was put in for chemotherapy for NHL 3 years ago. I am now using it for IVig. I have not had any infections I think due to diligent nurses scrubbing for what seems like hours before my port is accessed. Some patients use a Lidocaine cream that can be put on beforehand. My port twisted and was difficult to access for a longtime until PT was suggested. So, now the port is accessed easily, so much better than an IV, at least for me.
I hope the IVig works for you. It has helped me immensely!