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Are you taking Reclast for osteoporosis?

Osteoporosis & Bone Health | Last Active: Feb 14 5:27am | Replies (267)

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@mitllama

There is no report on PE and Reclast. I reported my case to FDA and asked my doctor to file an official report with drug lot number. I will try to tell Novartis myself because my doctor did not want to report to our hospital pharmacy.

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Replies to "There is no report on PE and Reclast. I reported my case to FDA and asked..."

My endocrinologist said she checked the two drug databases and then the medical literature, and found nothing relating Reclast with pulmonary emboli. She said she also talked with two other endocrinologists and none of them knew of any such report. However the lack of a cause for pulmonary emboli led to a consultation with a hematologist who found a Phase IV clinical trial that studied, among other endpoints, the frequency of deep vein thrombosis and Reclast. So there is definitely a link between this osteoporosis drug and clotting problems. At this point, 5 wks after my Reclast infusion, the pulmonary emboli are my only sequelae from this drug (whole body migrating pains and double vision have ended), but I am being monitored carefully now for possible development of pulmonary hypertension, which would mean permanent damage. I am short of breath when I exercise and my oxygen saturation goes plummeting down (assuming the pulse oximeter is accurate; I returned the $20 unit I bought first to Amazon because it was blatantly wrong even in measuring my pulse, but my $40 unit doesn't work unless my hands are warm, so I also have to monitor the qualitative "perceived effort." I have already told my endocrinologist that I have no intention of ever taking an osteoporosis drug again; the known side effects are already scary and now it is clear that there are very serious unknown (to the doctors) adverse reactions.