← Return to Just diagnosed Stage 3 CKD: Should I be referred to a nephrologist?

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@ljashton

My husband has been diagnosed with CKD3a. He’s overweight and had a bad UTI two years ago. His PC did not tell him his diagnosis, but he did mention reduced renal function. We first truly realized the situation when we saw CKD written on the after visit summary. This seems to be a familiar story. Also, we started researching and changing diet to improve blood levels. We scheduled a consult with a nephrologist but couldn’t get in earlier than August 1(search started in March). Not easy. We’ve reached out to Mayo andare in the process of trying to snag an appointment sooner than that.
The main thing is knowing what to eat for his specific needs.
After adding lost of water and cutting salt and protein, etc, his EGfr etc has vastly improved- possibly at Level 2 now?
Question- I’ve seen mention of numbers above 59 and I know there’s an equation to find that number but I don’t know how to figure it and why in the world is it not made available to patients from the start?

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Replies to "My husband has been diagnosed with CKD3a. He’s overweight and had a bad UTI two years..."

@ljashton Welcome to Mayo Clinic Connect! You've come to the right place to ask questions, and learn from others about their experiences. We are all unique, but share similar stories, and what works for one may not be the same for another, or may be close with a little "tweaking". It underscores we are all in this together!

As so many have talked about, diet plays a major role in CKD [chronic kidney disease]. Paying attention to lab results, we can see improvements when we limit red meat, sodium, calcium, potassium, and phosphorous. Exercise also plays a major factor in our health, in general and with kidney issues. As a Stage 5 patient, I have watched my eGFR numbers slowly decline since 2007. One thing to remember, is that results are best viewed as trends, not a single set of results. A difference in labs, or hydration levels at the time of the blood draw, can change what we might be expecting to see. If the cause of our CKD is known, that issue may play a major factor in how our disease progresses.

As for eGFR numbers, here is a link to the National Kidney Fund article to help you understand what's behind that number. They are a great source of information, and also check out their diet section! https://www.kidney.org/atoz/content/gfr

Others have expressed the frustration of not having their medical professional take a Stage 3 diagnosis as serious enough for intervention. I put myself on a strict renal diet before 2010, and I believe it helped me slow my disease, even though doctors kept telling me "You don't have to do that." Being proactive and responsible in any way I could was beneficial to me. It is my belief doctors do us patients a disservice by downplaying the way we can guide ourselves to a better outcome.

Any other questions for me?
Ginger