I’m sorry your symptoms are still worsening. I am 18 months out from symptom start (first vaccine) and I still have them. But then, I have also had a second vaccine and a booster. I am finally having slight improvement but I don’t count on it to last. At this point in my life I am just thankful that other than the considerable stress this has caused me I’m not actually disabled from this “syndrome” or whatever you might want to call it. One thing I’ve learned for sure is that No doctor is an expert in this as it’s all new so my advice is to listen to your own body and neither raise nor lower your expectations without valid reason to. As for the Neuro Long Haulers Facebook group I would like to throw a word of caution to anyone thinking of joining that group, I received absolutely no help there and became more stressed out and depressed than I already was from some of the stuff I was reading. Quickly left it behind. Best of luck to you. This thread does run hot & cold but I still check in everyday.

Yes I’m in that same group. My foot and leg neuropathy has worsened since second Pfizer as well. Good that people are finally talking about it