← Return to Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

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@leighs2011

I had a really hard time with recurrance with mets to my lungs, andfor the first few months no treatment or bad symptoms. It was not growing much but micro mm growth in lungs. My doctor said we did not have to treat because stable (mostly) After almost two years we tried a drug trial that just hit a plateau so stopped. My recurrence has luckily been slow growing. Don't listen to statistics! just over last weekend my daughter (M.D.) at UCLA got a message about maybe doing the 5FU origional chemo again! He will explain next Tuesday but I have been so anxious I had to use my emergency Xanax. The idea of getting another port implant and losing my hair again is making me feel ill. But some folks online have gotten rid of a recurrence twice so I hope you are lucky!

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Replies to "I had a really hard time with recurrance with mets to my lungs, andfor the first..."

This is Brenda again. Bald heads are nice in the summer at home and a light-weight wig, good one by Paula Young works for me, works for going out. I call it my hat and everyone that knows me says it makes me look younger and those that don't know don't know it is a wig. We are just being fashionable Leighs.

our oncologists teams are amazing just when we said to ourselves my husband should not endure more chemo, his oncologist had consulted with the g. i. oncologist and found that immunotherapy would be more helpful. Indeed it was for hom. Metastasis stopped and disappeared . now for 2.5 years and now no therapy for 1.5 years. Si good there is progres in cancer treatment. Journaling has helped me as the caregiver to move forward. But I hear you, I did have difficulty with medical teams accepting the fact his bo was not running high. At home it is even liw in double digets bit will go up 30 or more points at the office. I found first that he used a child cuff for a while , then a small again finally. Of course using too large of a cuff makes it lower and making sure the right size cuff was used was a first step. but the technique of getting the bp within a minute or so after setting down in the office showed the high BP. Home health insists on no talking and the patient in a sitting position with legs uncrossed for 5 minutes then the assessment. The question of how have you been doing brings up memory distant as well recent past. All can be reflected in the BP. He was the. worst in his Pcp of 24 years office. so asking the cna to let him relax after getting there has helped so much. Old memories and the issues faced were creating immediate changes and BP meds brought thr general BP down way too low at home. The body remembers so much. CBT therapy helps so much.