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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)
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@wiedd

Hi Amanda, yes....I have been suffering now for about 6 years. EM and Reynauds. After many, many doctor and specialist visits they suspect that the EM may have been brought on by Lyme.

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Replies to "Hi Amanda, yes....I have been suffering now for about 6 years. EM and Reynauds. After many,..."
John, Volunteer Mentor | @johnbishop | May 27, 2022

Hello @wiedd, Welcome to Connect. I know it has to be frustrating when you are trying to get answers after seeing many doctors and specialists. Since you mentioned you also have Reynaud's there is another discussion you might find helpful -- Raynaud's Syndrome: https://connect.mayoclinic.org/discussion/raynauds-syndrome/

Have you found any treatment that helps you?

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