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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 2 days ago | Replies (415)

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@carlakay72

You have been through a lot! Thank you for sharing. I understand your comment about not needing a label, but my thought is, if I can get a diagnosis then maybe I can get treatment. I foresee one day needing an assistive device to walk. As long as I don't push myself, I do fine. I would walk a mile or so on my lunch break, and I can't even do that anymore because I get so fatigued. Best wishes to you.

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Replies to "You have been through a lot! Thank you for sharing. I understand your comment about not..."

Best wishes to you too!

My neuro was out sick on the day of the appt. I made a year ago and now cannot see me until late July. They referred me to PCP. I told them that it is not useful to go to PCP with weird neuro stuff and I will wait.