I started having twitching in my right eyelid a few weeks ago, which spread to the cheek, and then my right arm and hand, and the arm also has a sort of rolling vibration every once in awhile, and sometimes goes numb. I have had facial numbness on the left side for about a year but nothing on the right until recently. The right arm also has nerve pain as does my face.

I have had "paresthesias" since 2001 and neuropathy is on my record but this twitching is entirely new.

I am reluctant to even see a doctor given the wild goose chases that result, often with no answer anyway. I had a paraneoplastic syndrome with my breast cancer and need to check that out. Could be spinal cord/neck. They way I handle these things is to try to figure it out myself then get the doctor to do the appropriate test! My neuro is easygoing, which I usually like, and I imagine he will joke that this is just another code among the many in my chart.

I had an abnormal brain scan in the past which he just said could be an artifact. My eye doc and rheumatologist have in the past suggested I have MS. I have a lupus diagnosis and very abnormal ANA but I doubt I have lupus. I don't need a label until I want to take immune suppressants!