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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 3 days ago | Replies (359)

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@carlakay72

I am 49 and 2 years ago my eyelid started twitching. One year later, I had trouble walking and dizziness, which lasted 2 months. I also felt little burning zaps that happened randomly all over my body (I thought I was getting bit by something) 2 months ago I started having trouble walking again (balance and fatigue) still having eyelid twitching, skin zaps, and now the muscles in my feet twitch and my toes move on their own and sometimes curl. I also have numbness and tingling in my legs. I saw a neurologist who ordered an MRI that showed some white matter, but he said it was normal for my age. He also checked me for myasthenia gravis (neg) After 3 appointments he said he was "handing" me back to my PCP. He said I have anxiety. I am searching for another neurologist

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Replies to "I am 49 and 2 years ago my eyelid started twitching. One year later, I had..."

Welcome @carlakay72, I'm sorry to hear the neurologist referred you back to your PCP. I think I might also look for another neurologist if I was in the same situation. Have you thought about seeking help or a second opinion at a teaching hospital or major health facility?

I’ve had twitching starting 15 years ago. Which caused me to spin into a ball stress, and not understanding why this was going on. In the past 5 years I haven’t noticed as much, but a month ago woke up with eye twitching. It brought me right back to where I was years ago. I have no other problems, systems, just twitching.