In 22 months, I have experienced two one week periods of feeling like myself again. These episodes did not last. Now, I am, also, working through constipation/diarrhea problems and shortness of breath after exertion (PEM) as bad as ever. I am sick of going to doctors who don't do anything so have not revisited the Pulmonologist or Cardiologist. I carry OTC oxygen which seems to help temporarily with episodes of SOB - wonder why when nothing is wrong with my lungs?

I am working remotely with a post-Covid clinic. Their prescription reflects the same treatment that I have been practicing on my own - pace myself and gradually increase exercise. Hard to do when any upright exercise brings on SOB. I do my own yoga/abdominal routine lying down everyday.

In the meantime, I have developed shoulder pain - was up all night with it and have a fractured knee which is being treated with time and a knee brace. I'm waiting for a call from the doctor about my shoulder right now. I feel like my body is collapsing around me.

Anyone have any other ideas?

Thanks -