← Return to Remission: When do you consider yourself in remission from MAC?

Discussion
Comment receiving replies
@thumperguy

Sue, “the best you might be willing to say” is well stated and certainly adequate.
It’s been several years since a flare up with fever. Discovery of 7% saline was a watershed event in the management of Mac/Bronch. I’m about ready to “test the limit” to discover how “infrequently” I can nebulize before causing a febrile exacerbation. Don

Jump to this post


Replies to "Sue, “the best you might be willing to say” is well stated and certainly adequate. It’s..."

Hope you keep us updated on how this goes!

I was so happy to find this forum and think the advice of 7% saline has kept me stable. I am to nebulize twice daily and get tempted to decrease to once and see how it goes. However, if the current practice is working well, and there are times when only once a day can be done, sticking with a regimen that works seems the course to go.....

Don, DO NOT STOP THE SALINE REGIMEN!!!!!!!! I got lax with it over the last month and now I have the most colonies of MAI than I ever did before. I had been testing negative for MAC/MAI since 2014. Now, add to that, my dr at Mayo took me off of my alternating monthly antibiotics last Dec. I was left with one 10 day run of cipro every other month. Believe me, I WILL NEVER skip the 7% saline treatment again. Part of my neglect with it has been my two week testing for a lung transplant. Most mornings I had to be there at 8:00 a.m. some at 6 a.m. some at 7 a.m. The tests would run all day most days and I was too exhausted mentally & physically to do it at the end of the day. SO, please stay on schedule with that. At least once a day.

Don't do it thumperguy! I didn't nebulize regularly for a while. The mucus built up and I coughed constantly until I started Nebulizing daily again. I coughed so much my stomach hurt!

Don, you and I are the same age, similar time since last big flare up. What’s your motivation to test reducing nebulizing with saline?
Linda (woot)

Hi Don, just wondering; why would you want to chance it? I can understand if you are burnt out on doing this routine every day. I think we can all identify with that.