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DiscussionRemission: When do you consider yourself in remission from MAC?
MAC & Bronchiectasis | Last Active: Feb 13, 2023 | Replies (87)Comment receiving replies
Replies to "Sue, “the best you might be willing to say” is well stated and certainly adequate. It’s..."
I was so happy to find this forum and think the advice of 7% saline has kept me stable. I am to nebulize twice daily and get tempted to decrease to once and see how it goes. However, if the current practice is working well, and there are times when only once a day can be done, sticking with a regimen that works seems the course to go.....
Don, DO NOT STOP THE SALINE REGIMEN!!!!!!!! I got lax with it over the last month and now I have the most colonies of MAI than I ever did before. I had been testing negative for MAC/MAI since 2014. Now, add to that, my dr at Mayo took me off of my alternating monthly antibiotics last Dec. I was left with one 10 day run of cipro every other month. Believe me, I WILL NEVER skip the 7% saline treatment again. Part of my neglect with it has been my two week testing for a lung transplant. Most mornings I had to be there at 8:00 a.m. some at 6 a.m. some at 7 a.m. The tests would run all day most days and I was too exhausted mentally & physically to do it at the end of the day. SO, please stay on schedule with that. At least once a day.
Don't do it thumperguy! I didn't nebulize regularly for a while. The mucus built up and I coughed constantly until I started Nebulizing daily again. I coughed so much my stomach hurt!
Don, you and I are the same age, similar time since last big flare up. What’s your motivation to test reducing nebulizing with saline?
Linda (woot)
Hi Don, just wondering; why would you want to chance it? I can understand if you are burnt out on doing this routine every day. I think we can all identify with that.
Hope you keep us updated on how this goes!