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Wife Just Diagnosed w/ ES SCLC - What Can We Expect?

Lung Cancer | Last Active: Aug 20, 2022 | Replies (222)

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@rlogan

Good morning Merry, sorry about the delay in my response.
We still do not have a schedule for her palliative lung treatment. They may be waiting approval from out insurance company. She is pretty much bed-ridden at this time. The pain in her back and hips has increased steadily over the past several weeks and requires morphine pills morning and night with oxycodone at least once a day as a supplement. She was also prescribed Valium to help her remain calm. She can still walk very short distances, but requires additional oxygen during the process and for about 15-30 mins after during recovery.
She developed a severe rash that started on her buttocks and spread rapidly over her back, legs and stomach. Our family doctor prescribed hydrocortisone 2.5% and ketoconazole 2% which worked great. They gave us two small tubes (60 g total) of each and when we tried to get them refilled, they told us that these were supposed to be 30 day supplies. We used them in 3 days due to the large area we had to cover. We ended up using OTC hydrocortisone 1% and an antibiotic cream to finish getting rid of the rash.

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Replies to "Good morning Merry, sorry about the delay in my response. We still do not have a..."

Good morning Bob- I'm sorry to hear that Liz is pretty much bedridden. I was hoping that her lung treatment had started. She is probably very tired from her meds-all put together they pretty much pack a powerful punch. Which she needs at this point. Are you staying home now or do you have someone taking care of her before your daughter arrives?

I know that you have recently attained power of attorney for health care. Do you have other legal papers settled? I know that this is a nosy question, but I want to make sure that everything runs smoothly for both of you.

I hope that you are well and taking a break every now and then. I realize that this is an awful time for you, but if you need to walk away for 15 minutes if you need it and if you can.

You are in my thoughts. You are not alone, Bob. All of us on Connect are here for your support.

Bob- Ask the doctor if he will prescribe a larger tube. Explain that the tubes don't last very long because of the area it needs to cover. I have a tendency to lather these things on. Maybe cut back a bit if you can?

Please don't worry about answering me right away. I know that things must be hectic. But please don't hesitate to ask me for help!