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Anyone out there diagnosed with Pudendal Neuralgia?

Chronic Pain | Last Active: Oct 14 2:50pm | Replies (200)

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@can55

I don't think I have pudendal nerve neuralgia. I have been told that I suffered damage to my pudendal nerve probably during childbirth. In reading articles about the pudendal nerve, I have noticed some things i am familiar with. I was in tremendous pain after my first child was born. Forceps were used. I was told that I tore and I was packed within to stop the bleeding. My second pregnancy was with twins and I felt the sensation that they were going to fall out. Maybe one was pressing on the pudendal nerve? Some of the literature describes inability to achieve orgasm. Most doctors I told took this to mean lack of desire, but it was quite the opposite. Everything else worked up until orgasm. I'm thinking that may have also been caused by the damaged pudendal nerve. My husband became determined to help me overcome this dysfunction by increased effort. THEN I experienced the intense burning pain you describe and could not sleep. What brought me to the doctor years later was not being able to control the sounds of expelling gas and very minor fecal incontinance. I am seeing Dr. Michael Snyder in Houston who is recommending surgery implanting a nerve stimulator. Anybody on here familiar with any of this?

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Replies to "I don't think I have pudendal nerve neuralgia. I have been told that I suffered damage..."

Welcome @can55, I was not familiar with the use of a nerve stimulator for pudendal neuralgia but did find this article with some information on the topic that may be helpful --- Initial experience using a novel nerve stimulator for the management of pudendal neuralgia: https://pubmed.ncbi.nlm.nih.gov/34196055/

There is also a discussion on the topic that may be helpful -- Anyone used Spinal Cord Stimulation for pudendal nerve entrapment?: https://connect.mayoclinic.org/discussion/anyone-experienced-in-using-scs-for-chronic-painb/

@user_ch98d0b5c and @barbbie have posted in another discussion about a spinal cord stimulator for pudendal neuralgia and may have some information or experience to share with you.

Have you done any research on the procedure and how it's helped other patients?

Hi, I got the nerve stimulator in 2017. It does help. It's not a cure but takes a point or two off the pain. It was performed by Dr Richard Marvel in Annopolis.