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Aromatase Inhibitors: Did you decide to go on them or not?
Breast Cancer | Last Active: May 12, 2023 | Replies (1190)Comment receiving replies
I would also like to see those studies. I was on letrezole for only 4 months after a bilateral mastectomy for invasive lobular carcinoma, er+, pr+, Her2- , grade II, stage 1A, before I developed very painful carpal tunnel symptoms with trigger thumbs on both hands and body aches everywhere, that kept me from sleeping. And brain fog with some depression thrown in. My oncologist suggested a break. I don't know for how long. I have been off the drug for two weeks and the body aches are better. Depression and brain fog is better, but the carpal tunnel and trigger thumbs have not resolved. I have tried physical therapy and ibuprophen. It's very difficult to think of going back on AI's. I am 69.
Replies to "I would also like to see those studies. I was on letrezole for only 4 months..."
I'll find the studies and send you the links by message if that's OK. As to what you're experiencing, hopefully this is temporary and will reverse itself. Can you get a second opinion and/or a referral to the right specialist to help? I have a golfer friend who had surgery to repair wrist tendinitis that was 100% successful so that might be an option if this doesn't self-resolve,
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I made it through the aches and pains for 4.8 years and then got slammed. I don’t know why. I am your age and had a cortisone shot near my thumb/wrist since the hand doctor said it was tendinitis not carpal tunnel. It worked but now I have Achilles tendinitis (same side) and can barely walk. Not sure what I am going to do this time. I think the AI dried up everything! But I am glad I made it most of the way through. Yoga is helping a lot. I was lucky to try the hand doctor because my husband has been his patient or I never would have thought of that. Other people have tried different AI’s. My son’s mother in law switched to tamoxifen which is not without risk, so I would explore the options. Try not to give up.