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Has anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: 14 hours ago | Replies (345)Comment receiving replies
Through process of elimination, including multiple blood tests, a nerve biopsy, and spinal tap, two neurologists concluded that I had an autoimmune reaction to either spinal fusion surgery, a UTI, medication or anesthesia. My PN is long fiber, axial, and not demyelinating. The recommendation was for IVIg for 3 cycles, and I showed improvement in strength and range of motion in both legs. I just completed a fourth cycle and am scheduled for 2 more cycles before another evaluation. I am also in Aquatherapy with a PT once a week, and that has improved my gait and balance on land.
I hope this information on IVIg helps others.
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Thank you - I have an appointment with a new neurologist next month and hoping it means a new discussion versus a general rubber-stamping of maintaining the unknown from the past. As long as he talks and explains, that will be progress. I've only been told "it COULD be a post infection disorder or a vitamin deficiency; but without knowing for sure we can't treat it with IVIG". But I have a list of questions, and I thank you for your input. I'll be happy with 20 second logical responses and reasonings; I'm learning a lot can't be done, and want to make sure diagnostics support that conclusion. I should resume my aqua therapy here probably as it continues to warm up the next couple of weeks; I've missed it!