The odd thing about the OncotypeDX is the unusual results it can yield. The Oncotype website cites a stage 4 breast cancer, with positive lymph nodes, that nonetheless tested at a low 'risk of loco-regional recurrence at 9 years.' And, conversely, a client whose grade 0 tumor, with lymph nodes tested negative, had a very high OncotypeDX recurrence risk score. I had the test done and, as a consequence, spent an hour talking to a lead scientist there and he cited other anomalies in test results where the clinical evaluation was very different from what the gene testing yielded. This is not suggesting that it would have made any difference in the course of your treatment, just to say that there are times when the data it provides is surprising and can lead to a re-evaluation.

I know you haven’t found anyone with your particular diagnosis here, but did you check out the triple negative threads? That seems like the closest available. I have been thinking about you, and wonder if you have had a scan yet? How are you doing now?