Hi @ripley, did your doctors ever prescribe a diagnostic trial of corticosteroids to see if your symptoms go away? I had most, but not all of the symptoms for GCA (which sound a lot like yours) and a positive temporal artery biopsy. Have they tested the arteries on both sides of your head?

Did you get ever get checked out for fibromyalgia? Before I was diagnosed with PMR/GCA a friend who has fibromyalgia said my symptoms sounded like hers. I don't think fibromyalgia has high inflammation markers. I hope you can get a diagnosis and some relief to your pain. All the best, Teri