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Idiopathic neuropathy and dizziness.

Neuropathy | Last Active: May 22, 2022 | Replies (50)

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@christine71

I do and do get dizzy. I also feel like no one could explain it so they give it a name idiopathic nephropathy. I was told it was a minor inconvenience. That's a hard one for me to take, because it has changed by life and I'm getting no recognition of that or answers other than drugs. I feel like something else is going on and no one really knows so they give it a label and meds. I've been trying to stay active. My feet, legs and hands are numb. Luckily I don't have much pain. I also have tried to eat an anti inflammatory diet. I have always wondered if this isn't caused by Lyme disease, I've had tick bites. Tests show that I'm OK, but I really wonder? This sounds pretty negative, but try to stay positive. Those of us who share this understand!

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Replies to "I do and do get dizzy. I also feel like no one could explain it so..."

@christine71, It can be really difficult to understand when there just doesn't seem to be an answer. One thing we can do as patients, is learn as much as we can about our condition and be a better advocate for our treatments. For neuropathy, there are two sites that I have learned a lot from and you might also find them helpful.

-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

Like you mentioned, it helps to stay positive!