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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: Nov 14 4:35am | Replies (415)
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@rollins2000

I can really appreciate the symptoms your are having. I get twitching in my claves and upper thighs. The anxiety that is related to these twitches is making me crazy. The flood my legs when I’m at rest, but when I move they subside. So I am constantly moving.

My legs hurt because I’m always stretching or working them out and I’m tired.

I find that when I’m relaxed - after taking my Ativan - everything goes to sleep. This makes me believe that these twitches are activated by my nervous system. I’m still struggling on how to deal with them during the day.

Does anyone have any strategies that work for them for this condition ?

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Replies to "I can really appreciate the symptoms your are having. I get twitching in my claves and..."
John, Volunteer Mentor | @johnbishop | May 21, 2022

Hello @rollins2000, Welcome to Connect. I know it's frustrating when you are struggling to find an answer to what's going on with your health. While we wait for other members to share their experence, I thought I would share this patient story that I read that sounds similar.

Living Each Day to the Fullest: https://www.gbs-cidp.org/patient-stories/living-each-day-to-the-fullest/

@jod12, @fitzy, @kennapie, @willard74, @pathfinder2263 and others may also have some information or suggestions to share with you. Do you think the anxiety you mentioned may play a part in your symptoms?

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