I can relate to and agree with your comment! After an almost overnight change, I ended up going to the ER and then waited 2 months for an appointment with my gastroenterologist. A colonoscopy a week after that showed Torturous colon. That was a month ago. I also appreciate being able to learn what other people are doing to treat this condition. I’ve also been researching online about diet and other ways to help. I’ve been taking the lowest amount of senna softeners I can to help right now but plan to use diet. I drink more water than I used to.
With your years of caretaking for your veteran husband, I’m sure you’ve seen neglect in care. I know a few veterans who have a lot of frustration over the VA’s level of care, if that’s where he went. If not, as you’ve experienced there are doctors who are proactive and others who are not! I’ve been treated pretty bad by some doctors I’ve seen. When that happens, I move on.
I have fibromyalgia and it’s an illness that is difficult to diagnose and treat. Some doctors still attribute it to mental health. I was lucky early on to find a doctor who's wife had it.
You’re on the right track! This site is helpful, being able to talk to others living with the same conditions. If you do any research online, that can be a helpful way to read about diet and other useful information. Just type ‘diet for tortuous colon’ and stuff will pop up. Some food websites have dietary information also. I’m just starting to learn myself! I’ve learned how valuable being my own advocate is, as you are doing!

I just went through this this week. My gi is out of state so my local hospital won’t accept orders. I have been backed up for days & had to ask my pcp to order an X-ray. I have explained to the nurse twice that they had to have them specifically look at my colon to see how much stool was in there. I went for the X-ray & told the tech the same thing. That night the nurse calls to tell me there are no gas pockets! Many things wanted to come out of my mouth! So I asked if there was anything about stool? Mind you, I’m in Walmart. Oh, no obstruction! What about large amount in descending colon? Oh it just says something about retained stool. That was as good as I was going to get. My pcp, who I have only had since January, and I constantly battle over this. I tell him I just need a simple X-ray to see how much stool is in my colon so I know how much stuff to take. My gi can’t order. Besides, my gi has basically told me he can’t manage my constipation. I’d have to call him every other day. I have to do this on my own. Yes, if it gets severe, I will go to the ER, but I can’t go there every time I can’t poop! He just can’t seem to get that! Sorry to rant for so long, but honestly. I was totally ready to jump through the phone!