← Return to Running out of hope

Discussion

Running out of hope

Just Want to Talk | Last Active: Sep 30, 2022 | Replies (26)

Comment receiving replies
@loribmt

Good morning, @tiredandalone Your @name makes me feel very sad and concerned for you. Reading through your post today, my goodness, you’re really going through the ringer with all these unexplained symptoms! No wonder you’re frustrated and tired. But I do hope you’re not completely flying solo. Do you have friends, family, or pets that can offer some support or help bolster you when you’re feeling alone? Well, I’m happy you found Connect, you won’t be alone here. ☺️

Regarding your symptoms. You’ve been seen by a number of doctors and had quite a few tests run. What I noticed also was the recurring symptoms of illness which points to your immune system not being at its peak performance level.

You mentioned having Covid in 2019 and that you’re still experiencing most of those symptoms. Were you feeling perfectly healthy before having Covid? Have you ever heard of Covid Long haul? Some people who had the virus never feel as though they’ve recovered. The Connect forum has a group dedicated to the symptoms and any questions from members experiencing similar issues.

Here’s the link to the Group along with a excellent podcast on Longhaulers and one conversation you might find interesting as an introduction to the discussions in post covid group.
https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/
https://connect.mayoclinic.org/comment/601628/
https://connect.mayoclinic.org/blog/podcasts/newsfeed-post/post-covid-19-syndrome-can-be-a-long-haul/
I’m not saying this is what’s going on but it’s another avenue to explore.
Has your doctor also checked for any other viruses such as CMV or Epstein-Barr?

Another item that raised my eyebrows a little is the elevated protein in your blood. Inflammation in the body can cause that but your doctor can have a lab test run to zero in on the type of protein. More specific tests can help determine the source such as liver or bone marrow.
Has your doctor further mentioned the protein in your blood?

Jump to this post


Replies to "Good morning, @tiredandalone Your @name makes me feel very sad and concerned for you. Reading through..."

I too have had a few dozen persistent symptoms for over 2.5 years now, since November 2019 when both my husband and I became deathly ill with what we believe was Covid. I have been sick ever since with all types of strange neurological symptoms that are debilitating yet all tests are normal and most doctors shrug off my symptoms as just 'anxiety'. I finally just had a small nerve fiber biopsy yesterday at USF Tampa University and I found a doctor in Lakeland Florida, Dr Kathleen Haggerty from Watson Clinic who is specifically working on long hauler covid patients.
You might look into a skilled Long Hauler Covid doctor-clinic that could be of help in finding out what has happened to you. I know of so many people, like us, with all these multitude of weird symptoms who posts on the Mayo Clinic blog that are in our same situation.

I too am frustrated and feel so hopeless and many times I feel the doctors are brushing off my health concerns and strange symptoms as just anxiety. Please keep us posted as we do care and are here to support others suffering through our health crisis'.