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Prednisone tapering is challenging. What does remission feel like?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 3, 2023 | Replies (209)
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@minijohn

In my experience jaw pain and temporal headaches indicated my PMR had advanced to Giant Cell Arteritis.

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Replies to "In my experience jaw pain and temporal headaches indicated my PMR had advanced to Giant Cell..."
John, Volunteer Mentor | @johnbishop | May 19, 2022

Those are the symptoms my doctor was always reminding me to watch for when my PMR was active. They were always watching for GCA.

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milld835 | @milld835 | May 19, 2022

I'm so sorry to hear this. This is why I went into the ER to find out if it had morphed into GCA. After I upped the Prednisone back to 15 mg. the jaw pain disappeared. It was quite excruciating; felt like the pressure on my ears was going to explode them (this I've experienced often along the way), but I have never experienced the jaw pain before. Scary actually when you know what it could be. However, because my CRP levels (3) were way below normal, the Neurologist said not GCA. I do have an appointment with the Rhematology Clinic on May 30 (finally) and will get them to check it out thoroughly. I appreciate your comments.

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