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Neuropathy after TKR: I'm 68 and fearful of future

Neuropathy | Last Active: Oct 22, 2023 | Replies (112)

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@dbeshears1

Please don’t give up; I spent 6 months in a wheelchair when I got my sudden onset of idiopathic PN at age 51. Today I drive - my brain finally learned how to help me balance again, restore confidence in where my feet were positioned, and walk with walker or cane, or waddle about short distances on my own. I have no advice on what questions to ask doctor though, as I feel I have asked them all over my 5-6 years with this, and my answers have always been “we don’t know”, (hence idiopathic). A couple university medical center doctors said to just sit and wait and see what happens (did I mention 5-6 years?) What DID happen was physical therapy; in rehab nursing home first, then in my home, then outpatient. Yes, it was hard getting around without my support system, but today I am grateful for where I am and am having fewer pity parties for myself. It may be different when neuropathy is caused by post-op, we’re all different on here, but I’m praying you stick it out with PT and are able to enjoy some freedom out of that wheelchair very soon! And keep communicating here on Connect, I have learned more on here from experienced people than I have from my doctors since neuropathy is so befuddling.

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Replies to "Please don’t give up; I spent 6 months in a wheelchair when I got my sudden..."

I'm speaking for a family member, my son who was diagnosed with SFN at age 38 after going through a few stressful years in his life, SFN took hold. It came on suddenly and has the balance issues, pain, wet skin, etc. As he is/was very athletic and health conscious, the only thing we can think of was stress and anxiety triggered this. He has a toddler son and needs and deserves a long healthy life and is adamant against using anxiety meds for his stress. In fact, we are pretty sure the meds are part of the culprit here and was wondering if anyone else has taken benzos to control anxiety and then come down with SFN?