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DiscussionMy experience with Small Fiber Neuropathy
Neuropathy | Last Active: May 24, 2022 | Replies (85)Comment receiving replies
Replies to "Here is the issue with your test. They are testing your large fiber nerves. The large..."
I have a condition called brachiordial pruritus which is a condition that comes and goes and causing terrible itching on my arms. I don’t know if you are familiar with it, but the only thing that helps it is using ice packs. In fact, that is one of the ways they diagnosis it. Prescription creams don’t help at all. Many nights I go to sleep and lean on ice packs. I wanted to recommend you try ice, if you haven’t. It’s the only thing that has brought me relief.
Hello @issacmrobinson77, Welcome to Connect. I have small fiber peripheral neuropathy but my neurologist diagnosed me without using the skin punch biopsy which is OK by me. I had the condition for over 20 years before bothering to get a diagnosis. I had several nerve conduction tests along with a physical exam by the neurologist. The end result was the same as before, no treatment available to help with the numbness.
That's really why I started reading more about neuropathy and learning as much as I could. The two sites I've found most helpful for learning more:
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
It sounds like you also have done a lot of your own research to learn more. I shared my neuropathy journey in another discussion here -
https://connect.mayoclinic.org/comment/310341/
What have you found most helpful?