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Pain right side close to the belly button - transverse colon ptosis
Digestive Health | Last Active: Feb 6 8:30pm | Replies (11)Comment receiving replies
I would be tested for AIP (research info) on Google) by a hemotologist. I found out I had when my urine turned black. I also have nerve/muscle damage in my abdomen and pelvis. When the AIP hits I can't even talk the pain is so intense.
Do you have endometriosis that you are aware of? Another thing is cysts on your ovaries. I'm about 30 years older than you and I have experienced all these or I wouldn't say anything or think you should be tested for. With having the lap surgery any female issues should have been found. Might also want to try a good plain clinic.
Let me know if you find out more information. I totally understand being in so much pain, no one can really understand unless they have had acute/chronic pain.
Take care of yourself.
Carol
Replies to "I would be tested for AIP (research info) on Google) by a hemotologist. I found out..."
@wishingtobepain
Dear Carol,
Thank you for your kind response and suggestions. I do have cysts on my ovaries that occasionally come and go, they were seen during the lap surgery but docs said they didn't think the cysts needed to be removed because they were small and would disappear after my period... they didn't find any endo. I will try to get tested for AIP (I live in Prague and it takes ages to get anything from doctors, same as everywhere I suppose), will share an update in here once the results are ready.
I am very sorry you have to deal with so much pain as well, and I truly hope that somehow it will eventually get better.
Sincerely, Erna
Dear Ema,
Cysts can come and go but can also rupture. I had cysts larger than a lemon on my ovaries and one would rupture every few months. That is horrible pain. I remember not being able to sit, lay down, stand up without horrific pain. I had a complete hysterectomy when I was 26 years old. I always wanted children, God had another plan for me.
AIP is not a common disease and many doctors in the USA have not heard of, so not sure how that will be in Prague. Most doctors are familiar with porphyria, just not Acute Intermittent Porphyria (AIP). In the USA there are Porphyria foundations, if there is same in Prague they may know doctors that are familiar with it. Just trying to give you as much information as I can to help you.
How does healthcare work in Prague? Is it socialized? I'm not too familiar with care anywhere except USA. Have a cousin that is a pastor who lived in Canada for a while. He did not like healthcare there at all.
You take care, and if you ever need to chat, I am here for you.
Carol
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@wishingtobepain
Carol what does AIP stand for?
ZeeGee