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DiscussionAnyone familiar with pH balanced 7% saline, rather than acidic type?
MAC & Bronchiectasis | Last Active: Oct 30, 2022 | Replies (43)Comment receiving replies
Replies to "@nannette @sueinmn : Nan and Sue, Thanks for your response. With as much hacking and coughing..."
@poodledoc Yes, and I have reflux and I just finished listening to a three hour chronic cough conference from the European Lung Foundation (because I've had a chronic cough for four years since the 2018 flu that got me. And this is on top of the airway clearance cough that we have to do for bronchiectasis. There's an app out there now called HYFE and it measures how many times you cough in a day. It's not altogether perfect because if you go out of wi-fi range or have bad wi-fi it doesn't track as well. Anyway, even without tracking the whole day I cough anywhere from 100-300 times a day. Just depends on the day.) and there was one comment that stood out for me by a doctor/professor from the University of Manchester and that was that it's the reflux that causes some people to cough but even more so it's the GAS from the reflux that irritates the nerve endings in the throat. Very interesting. So you're right about inhaling something less acidic. I will definitely keep with the Pulmosal brand when it comes back in. Nan
I also will ask my doc to call the less acidic brand in for me.
Hey group🙋🏻♀️ Has anyone here (besides me) experimented with Halotherapy ( most recognized as Salt room therapy)?
I first tried it in Florida last November…it is…sitting in a (spa like room) with walls of pink salt(Himalayan salt blocks) for approximately 50 minutes, inhaling pharmaceutical grade sodium chloride that has been fed into a gizzmo(I call a Vitamixer) that feeds it through the ventilation system into the room. So basically you are sitting in a plush bean bag…being bathed in salt mist…and inhaling it. It caused me to cough a little at first, but when I left the room(hubby joined me) I could breathe well and felt good. The claims are it is good for allergies/asthma etc…and is a detoxification. I asked my ID doc what he thought of the treatment and he was leery. He said “I don’t think it is a good idea…you could contaminate yourself…honestly…when I walk in the neighborhood and inhale car exhaust, mowing & blowing debris, and common air pollution…am I not subject to contamination? I head to NJH in a couple weeks and will ask the rockstar team of docs. I am taking all the information I have on this therapy. I found that it claims to be used for Cystic Fibrosis. Also here in Charlotte NC…an oncologist/hematologist was sending children from Levine Hospital (good pediatric hospital here) for respiratory care to these salt rooms(cannot be too bad I guess) short of it…I have gone 2 times a month for the past 2 months.,,risking contamination I guess. Would like the groups opinion on this.
Regina
@poodledoc very interesting, I had no idea about this , will keep my eye out for Pilmosal. thanks
Heather