Hi everyone! I just joined. My first post disappeared before I was ready to post. I will rewrite it. I have the nerve disease CRPS (Complex Regional Pain Syndrome type 2). This immediately started from misplaced steroid injection March 2007. The year before I had just recovered from Chronic Pain from a horseback riding accident. I have tried about everything for help. Two Spinal Cord Stimulators. The trials worked well, but permanent ones failed. Neurosurgeon will not remove the battery that is compressing nerves on my spine where I fractured back at T-11 and T-12 in riding accident. He wants to put a new SCS in. This makes no sense. Research shows SCS are not for CRPS and many other types of Neuropathy. They may work for hours or years. What does all of the electrical stimulation do to your nerves? Destroy or cause more injury? Now I am using Positivity, Mindfulness, Retraining the Brain in connection to nerves, Physical Therapy including water therapy help. Also Bio-feedback and guided imagery to help with sleep. Sometimes self-hypnosis helps with relaxation techniques. There are several positivity groups for Neuropathy. Avoid groups full of negativity. They may cause more stress than any of us need. Staying in the present moment opens an entire new world. This is difficult for me to get there for a few seconds. I have seen a different world with this. CRPS is now causing trouble with heartbeat and blood pressure. Cardio doctor had nerve heard of this disease. I have read it is now the most painful disease known to man. A 42 out of 50 on the McGuill pain scale. I hope to get to know everyone
. Hoping everyone's day goes well. Your friend, Doreem