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@cehunt57

@windyshores I was diagnosed with type 1 at age 18. By the time I was in my 40’s I’d had two precarious pregnancies and had developed several complications of diabetes. I had retinopathy, peripheral & autonomic neuropathy and hypoglycemic unawareness. My endocrinologist informed me that any health conditions would affect blood sugar control and vice versa (even a common cold !) It is a two way street or a double edged sword. My primary physician advised that if I wanted to see my two girls graduate high school I should consider pancreas transplant. At age 48 I received a pancreas transplant. I have previously posted about my transplant story. It did not “cure” my diabetes but did help me control my blood sugar through insulin, diet and exercise. The retinopathy, peripheral neuropathy and hypoglycemic unawareness reversed. At the time of the transplant my kidneys were evaluated and I was diagnosed with mild chronic kidney disease but a kidney transplant was not recommended. The pancreas transplant has had a really good run and I consider it my God given personal miracle. My daughters graduated high school and college (one completed graduate school). They are married and I have 6 grandchildren! I am blessed; BUT 5-6 years ago my pancreas function and kidney function started declining. I was reevaluated for simultaneous pancreas kidney transplant. There is still some pancreas function but I am now stage 4 CKD. I’ve been approved & accepted for kidney transplant at 2 facilities. I chose Mayo in Rochester. I am inactively listed for kidney transplant. (My glomerular filtration rate ((GFR)) is a bit too high for active listing.) I’m too healthy! Thank God. I’ve been looking for a living kidney donor for about 6 years, but nothing yet. In the world of diabetes I’ve been diagnosed as type 2 by the Mayo team. I am working with my local endocrinologist to use and adjust to a continual glucose monitor (CGM) and we are working out the best basal and bolus rates for my insulin. I am currently doing multiple daily insulin injections (MDI) and am researching insulin pumps. So I apologize for the long post. My point is that it isn’t always as simple as whether a pancreas transplant can “cure” diabetes or whether the diabetes is type 1 or type 2. It is not as easy as a black & white situation. There are many shades of grey.

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Replies to "@windyshores I was diagnosed with type 1 at age 18. By the time I was in..."

I just always ask people (including media) to avoid generic use of the term "diabetes" to refer to type 2 and therefore leave type 1 out!

The posters on this thread had transplants some time ago. The study that supported tight control was finished in 1995. Since then, meters improved, faster acting insulins were developed, pumps became common and now CGM's. Pumps and CGM's are now connected and some people "loop."

The need for a transplant made sense for some people, in the past, but hopefully most can avoid them nowadays.