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After many months of coughing - CT chest scan shows bronchiectasis
MAC & Bronchiectasis | Last Active: Mar 4, 2023 | Replies (20)Comment receiving replies
Sue is a great resource for practical & intelligent advice. I will just mention that I was diagnosed 4 1/2 yrs ago at age 68. It was a slap in the face since I tried to exercise & take good care of myself. My pulmonary function tests have all been normal, but a bronchoscopy, CTs & multiple sputum tests have shown bronchiectasis & MAC. Hang in there. My major challenge has been hemoptysis which appears to be under control now. I believe that using a nebulizer with 7% saline has been the difference for me. So far no “big 3” . Getting a complete work up at National Jewish or Mayo would be great. Take care. Linda
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Hi! I am new to this forum. It was very interested in your post because I have the same. Diagnosed with bronchiectasis in 2018 and suffered through excavation maybe twice a year. Then at the beginning of this year I started experiencing symptoms of fever fatigue shortness of breath etc. Unfortunately I’ve never been able to produce Sputum, so after months of testing and trying to rule out everything else, I did the bronchoscopy BAL. The culture grow Mac within a week. I’m now waiting antibiotic resistance/sensitivity tests on the culture. I tried to do the Saline induction so bronchoscopy would not be necessary but I can never do it.
And I had terrible reaction.
Anyway, I’m just curious what your symptoms are. I have run a fever for almost 4 months and no treatment but it’s a terrible quality of life with that and the all the other symptoms
Hi - I am new to this site. I struggle with hemoptysis as well. It is extremely frightening to me when it happens. I usually know from coughing up blood that I have pneumonia or another lung infection. This recently happened several weeks ago and ended up in the hospital for 4 days. At first they thought I might have latent TB. I knew it was the bronchiectasis. I was diagnosed with it about 4 years ago. After I was released from the hospital I was on Cipro 2 times a day for 10 days. Seeing my pulmonary in another week.
So happy I found this site and able to connect with other individuals who experience some of the things I do. Thank you. Sher1
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Thank you, Linda. The NP said they will be culturing for bacteria and that I may not have any, that the nodules just may be from inflammation. I am hoping for that. I'm still waiting to hear from the medical supply company who will send me the nebulizer and I guess my meds (Duoneb). NP did not say anything about saline but I will definitively be asking her about it. Nancy