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vulvodynia

Women's Health | Last Active: Jun 26 5:28pm | Replies (38)

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@francesmharris123

I have been suffering from Vulvodynia for 4 years. It gets worse when I sit. I have been to many doctors and taken many medications and done physical therapy and nothing really works. Sitting makes it worse. The pain is similar to diabetic pain but in my vulva and vagina. The pain I have is a burning pain in my vulva and opening to my vagina. I started taking lyrica and it seemed to help a little but the lyrica doesn’t work if I am not careful how I sit down. I even sit on a doughnut to make me not hurt as much. I just had shoulder surgery and was put on a pain medication which also helps my Vulvodynia. No doctor will prescribe pain medication such as oxycodone-acetaminophen for Vulvodynia.

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Replies to "I have been suffering from Vulvodynia for 4 years. It gets worse when I sit. I..."

Hello @francesmharris123 and welcome to Mayo Clinic Connect. I am sorry to hear you are going through this. It is great you've reached out to connect with others who may understand what you are going through.

I was able to find an existing discussion on this topic so you will notice I have moved your post here: https://connect.mayoclinic.org/discussion/vulvodynia/

Members such as @gardeningjunkie @gingerly @lizziemnz and @ronnie3716 have all previously shared in this discussion and may be able to come back to provide you with some needed support.

In the meantime, I'd like to share the following resource that may be of interest.
- Volvodynia: Diagnosis and Treatment: https://www.mayoclinic.org/diseases-conditions/vulvodynia/diagnosis-treatment/drc-20353427

Have you sought a second opinion for care, by chance?